Welcome to my website – the new home of my blog! First you should know: this isn’t your typical blog. I don’t usually update on what’s going on with my health unless there’s something major that could affect my writing (like one time when I was on some cough syrup with codeine – I still cringe looking back at my grammar, spelling, and just all around poor writing in the post, but oh well). I like to talk about fun stuff, yet still tie in a little bit of a medical component that people can relate to. Second: things can get kind of weird around here, as you can probably tell from some of the pictures. I’m up for anything. I will discuss anything. Third: I want to be there for my readers. I am trying to create an awesome community of women with the Sick Chicks and I think that only works if we’re all there for each other. I am so much stronger because of the Sick Chicks I surround myself with, we have found a way to support each other through it all. I hope this will be a place to give and get that special kind Sick Chick support. So seriously feel free to email me anytime if you have questions, just want to say hey, or have any suggestions. Whatever it is I’ll get back to you. Now that that’s out of the way…
Here is a little bit about me. I’m 16 years old, I’m from California, but I’m by no means a beach girl actually my favorite place is Manhattan, New York. I love to read. John Green is one of my favorite authors. I really relate to Margo from Papertowns (I bet you thought I was going to say Hazel from TFIOS, got you there). I also write, a lot, as you can probably tell. I listen to music so much it’s hard to find me without my headsets in. I don’t know what my natural hair color is anymore because I’ve been dying all sorts of random colors since I was 12. My favorite has been either auburn or purple. I plan on getting a finger tattoo of either a semicolon or a blackbird, maybe both, as soon as I turn 18. Oh, and I have Ehlers-Danlos Syndrome (EDS), Dysautonomia, Postural Orthostatic Tachycardia Syndrome (POTS), Reflex Sympathetic Dystrophy (RSD), Restrictive Lung Disease, Poly-Cystic Ovarian Syndrome (PCOS), Scoliosis, Tethered Chord, Chiari Malformation, and Mast Cell Activation Disorder (MCAD). I think that’s enough stuff, don’t you?
The title of this post is aptly named “it” really has come full circle. My dear friend and fellow Sick Chick Mer has generously – and amazingly – made this site. I am actually sitting on a bed next to her as I write this post, which is just crazy on so many levels. Mer and I met randomly in Toledo, Ohio four years ago because we both had appointments with Dr. Grubb who is the POTS guru. We, as well as our moms, were instant friends. We had inside jokes after meeting just once. The only problem was we live on opposite sides of the country – me in California and her in South Carolina. We still managed to keep in touch and they even came out to visit us. But now as I’m on her coast and we’re putting the final touches on the website things really do seem to be coming full circle. When we first met, Mer and I were lying in bed watching “What’s Your Number?” now we’re still lying in bed, but we’re working on the website and checking our twitter feeds in between. You can check out her website MadebyMer under the page Our Community and there will be an interview posted about all of the great things she’s doing under the page Spotlight.
I can’t wait for all of the great things to come from this website!
This journey is only starting and I can’t wait to see where it takes me.