If everyone gets one miracle in life, I think mine is being sick. No, I’m not “happy” or “thankful” I that I am sick, but because of having a rare disease and living with chronic illness I know how strong I am. I have realized my passion for social justice and advocacy. I’ve realized how to appreciate the little things like being able to stand up or breathe, even getting older. I can laugh in basically any situation now. I’ve learned not to let something as uncontrollable as pain get in the way of living.
My mom has always said “it takes a village to raise a daughter”, and I have found that it “takes a village of sick chicks” to create change and to help shine a light even in the darkest of times.
The fortunate part about being sick is meeting some some of the most amazing people. I want to get to know each and every one of you. I hope you enjoy getting to know our community too - check out our spotlight.
My original Sick Chick blog is what gave me the idea to start this community. I still enjoy writing about my life experiences and hope you find them enjoyable and insightful or just something to identify with. Read it here.
When living in the world of the chronically ill we often meet other medically challenged friends who we establish an instant bond with as they truly understand the daily challenges of what you live with. And while we may meet these friends briefly through on line support groups, at a medical conference or at a doctor appointment, it is so important to hold on to them, to nurture the friendship and to support each other in whatever that support may look like. The Sick Chick network was created to unify and strengthen our friends who have truly become sisters. It’s a way that we can support each other to succeed, as there is strength in numbers. We are much stronger together!
My hope is that we are able to build a support network of strong, positive thinking young chronically ill women who do not define themselves by their illness or limitations and choose to make a difference in the world we live in. Sick Chicks will be a place to showcase our abilities, passions, uniqueness and strengths with the hope of inspiring others. Below is just a preview. Our community is strong! Click here to who else is taking part or contact me to join us.
I’ve been in and out of many hospitals and it’s not fun. This organization, Love Packages, which is run by teens, sends out personalized care packages to make hospital stays feel more comfortable and homey. This could be something really big for the chronically ill community. Right now Love Packages is raising money to bring more smiles to patients' faces.
I am a teenage girl in a little town in the state of South Carolina going through high school with a eye disease known as Ushers Syndrome. Ushers Sydnrome is a rare disease that affects both eyes and ears. I am here to make a change for the world and to reach out to others about impairments.
I have Ehlers Danlos Syndrome and Postural Orhostatic Tachycardia. I want to raise awareness about these illnesses and raise money for organizations that support the rare disease community. And because my life has been positively impacted by so many, most of all - I want to encourage everyone to give back.